Well, the doctors are certainly doing their best to keep things interesting (= crazy-making) for us.
They have come up with a new strategy for Jane's treatment: NO MEDS. Seriously (sorta). She's off all her antibiotics (she was on three) and is on a very low dose of the steroids. She'll still be getting other things (morphine and diuretics in particular), but she can take them orally, so they'll be able to take out the IVs they'd had to reinsert. With the steroids, she's pretty much at the end of the course they'd prescribed, and they've gotten to the point where they're now more worried about potential side effects than the benefits of the drugs. With the antibiotics, they're not sure she ever had an infection/pneumonia at all. AGAIN.
PEOPLE, WILL YOU PLEASE JUST MAKE UP YOUR MINDS?
The Infectious Disease guys have been up to see Jane for the last three days and they don't think she ever had an infection, that the bugs that grew in the culture were critters in every kid's trachea.
Fine. FINE. <throws up hands> I give up. I won't ask for consistency as long as they promise not to break her. That's all I ask.
Sheesh.
4 comments:
Well, they certainly are making sure that you don't get bored, aren't they? I hope, at the very least, they're going to leave her vent alone while they make all these changes, for Pete's sake.
I like the sound of "she can take them orally" -- it sound so normal, so doable!
More prayers, more good thoughts - heading your way.
Thanks, invisible friends! The vent remains untouched, the IVs are all out. We're inching our way toward normal...
all in all that is really great news...it's hard on this road to deal with all the certain uncertainties...sounds like Jane has her own plans and that is to come in the world and turn it upside down until everyone bows to her strength and will....GL with that as she gets older and wants your car....
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