The long-awaited Halloween pics of Jane are here! Forgive the quality -- for camera phone pictures of slightly blurry photographs I'm afraid these are as good as I'm going to get.
Please allow me to introduce to you MONKEY BALLERINA PRINCESS GIRL!
(Good picture of Jane, bad photo of outfit:)
(Bad picture of Jane, better photo of outfit:)
Um, no, I did not make this one. And I'm kinda wishing I had had the time/forethought to make her a teeny skunk costume because, well, come on. Can you imagine? If I can find teensy black sweats I may have to do it anyway.
So the sixth member of the neonatologist team is finally the attending for the entire month starting today. They usually do two-week rotations, but he's chosen to do four weeks to have more continuity of care. AND he came to the bedside when he saw me there (I'd missed rounds by about two minutes) AND he solicited my opinion AND he seemed to take me seriously when I suggested that they slow down on the weans for a bit, that I thought she wasn't getting a chance to catch up with one change before they threw another one at her. Can you believe it? I mean, I've liked all five of the other neonatologists, but until now the nurses have been the ones really listening to us and advocating on Jane's behalf. Oh, AND he told me to call in when I wasn't going to make it for rounds and they'd move on to other patients and wait for me before they got to Jane. I now totally understand why the nurses have all spoken so highly of him.
Jane had a better day today than she'd had lately. They made small increases on two settings (on the advice of St. Joel), and she was definitely more comfortable than she had been over the weekend. I'm hoping that a day off from any weans will let her regain some of the ground she lost last week. We snoogled for nearly three hours and she was very smushy and sweet. Well, until she had a massive blowout that leaked down her legs and through my sweater and into my shirt. (Note to self: quit wearing cashmere to the ICN. [Note to invisible readers: it was a $30 sweater from TJ Maxx. But still. Cashmere!])
The sole off note about my conversation with Dr. Congenial was that he spouted the same old line about this being a long road with lots of up and downs, etc and so on, that every single doctor has been compelled to reiterate at some point in any conversation longer than five minutes. We've been hanging out in the ICN for... let me check... FIFTEEN WEEKS on Wednesday. I'm pretty much aware of the length and bumpiness of this little ride we're on, thankyouverymuch. Why, WHY, must they keep spoonfeeding me the same tired cliches?
Awesome Nurse Angela was on today and was totally psyched about Dr. Congenial being on for the month. She's pretty confident that Jane's going to benefit from his attentiveness and make some serious strides. Here's hoping she's right. Peace out.