Guest Photographer Bess has been diligent in her duties.
Photos from yesterday:
And photos from today:
Obviously, she needs to come back again soon so everyone can enjoy the fruits of her shutterbuggery. (That is... maybe not such a good word. Shutterbugititude?)
I don't really know what to say today. No date for the transfer yet. Tom and I would like it to happen Monday, and Dr. Boston is ready to take her, but I don't know how many hoops have to be jumped through to make this go.
Jane had two echocardiograms today. The cardiologist came up yesterday, and he came up with the wacky thought that maybe all this time Jane's had an undiagnosed PDA (patent ductus arteriosus, aka the hole in the heart babies are born with that is supposed to close in the first couple of days). She's got an awful lot of the symptoms -- sweatiness, rapid breathing, pulmonary hypertension, right ventricle hypertrophy, etc. But the echos didn't prove OR disprove anything. I don't think anyone on Jane's team thinks that's likely (except for Tom).
Dr. Congenial had a conversation with Dr. Boston today, and then called Tom. In brief, Dr. Boston is ready to try another nitric wean (he called Jane a "responder" since she had that immediate initial response to going back up on the nitric) but with way more sildenafil but is going to wait until the transfer. In Dr. Boston's estimation there's a fifty-fifty chance she'll need the lung surgery. And Dr. Congenial pretty much told Tom he thinks Jane is just going to be down there long enough for the specialists to see her and give their recommendation, and then she'll be back north for the treatment.
We also got a little taste of the internal politics behind all this, which I won't go into. And finally, we got word that the attending team think Jane has a fifty-fifty chance of surviving all this. Do I even need to tell you all that Tom and I just don't buy that last bit?
Yeah. It was one hell of a phone call. I'm going to be processing this one for a while.
But first, I'm going to go back and look at the pretty pictures. Oh, and Jane breastfed again today. So there!